I think the title says it all! Shae's surgery is now scheduled for Thursday morning.
They will ring us tomorrow afternoon at about 5pm to confirm whether to fast her overnight tomorrow night. I feel surprisingly peaceful about it all (most likely because I had a good nights sleep last night).
Today we caught some trams, visited the Queen Victoria Markets (yellow peaches were $2/kg!!) and strolled along Southbank for old times' sake. And again it was kind of comforting to be in familiar places and I had some really good memories of the last time we "lived" in Melbourne.
They will ring us tomorrow afternoon at about 5pm to confirm whether to fast her overnight tomorrow night. I feel surprisingly peaceful about it all (most likely because I had a good nights sleep last night).
Today we caught some trams, visited the Queen Victoria Markets (yellow peaches were $2/kg!!) and strolled along Southbank for old times' sake. And again it was kind of comforting to be in familiar places and I had some really good memories of the last time we "lived" in Melbourne.
BTW The meeting with the surgeon yesterday went really well. He was very positive about Shae's readiness for this surgery and expressed that they have made major progress in the area of Fontan operations even since she was born.
We also learned yesterday that Shae will be on restricted fluids for quite some time post-surgery (about 50% of usual daily requirements) as well as diuretics, to prevent fluid buildup. She will be on an anticoagulant drug called Warfarin which takes a fair bit of management to achieve and maintain optimal dosage levels. This will mean weekly blood tests and measuring food and fluid intake for a while. And, Amanda, it means the return of the yellow!
We thought we had a fair idea of what lay ahead. But we are still learning as we go!! Thankfully Matt and I have continued peace about the whole experience and feel confident about managing Shae's recovery and her ongoing care.
God is good. He has you all in the palm of His hand and His timing is perfect. Keep resting in His peace - know we are praying for you all. Love and hugs, B and D.
ReplyDeleteGod is good. I agree - I have been praying and thinking of you all today only to find that tomorrow is the day but I guess you needed my prayers just as much today than ever!
ReplyDeleteLucky yellow goes with so many other colours - my favourite!! Am glad you are at peace with any delays and long-term care and know that God has you all in the palm of His hands. I will be reading your blog closely but know already that He will only continue to bless you! I remember those days on Southbank with you and your girls as such a special memory - was so much fun... Am glad God is so good- am reading Exodus 15 at moment - "who is like you? majestic in holiness, awesome in glory, working wonders" If He can part the Red Sea I have no doubt He can guide a surgeon's hands accurately.. Love and laughs, and prayers, Amanda